ASCO’s CancerLinQ and Count Me In introduced right now [April 5] a brand new collaboration that goals to permit most cancers researchers to be taught from each affected person with most cancers, by actively participating sufferers as a part of the medical analysis enterprise.
CancerLinQ—an actual world oncology information expertise platform developed by the American Society of Scientific Oncology (ASCO)—collects and aggregates de-identified digital well being data information from oncology practices throughout the US to advance most cancers care via high quality enchancment and analysis.
Depend Me In, a non-profit analysis initiative of the Broad Institute of MIT and Harvard, the Emerson Collective and Dana-Farber Most cancers Institute, supplies sufferers with a mechanism to take part in most cancers analysis by sharing their distinctive, de-identified medical data and historical past with most cancers researchers and investigators.
CancerLinQ will facilitate affected person participation in medical analysis by participating its supplier community to recruit and refer sufferers to the Depend Me In program within the physician’s workplace, on the level of care. Sufferers who enroll in Depend Me In consent to share details about their most cancers expertise, copies of their medical data, and samples.
“The truth is that lower than 5% of sufferers with most cancers take part in medical analysis, and as most cancers researchers we should do higher and provides extra sufferers the chance to take part in analysis,” mentioned Sean Khozin, MD, MPH, chief government officer of CancerLinQ. “With CancerLinQ’s new collaboration with Depend Me In, we’re democratizing affected person participation in most cancers analysis by permitting extra sufferers with most cancers, together with these from marginalized communities who’ve traditionally been excluded from analysis, to contribute to most cancers discoveries and propel progress in opposition to most cancers.”
“Each affected person with most cancers ought to have the chance to take part in and contribute to most cancers analysis,” mentioned Nikhil Wagle, MD, rresident and director of Depend Me In. “Sufferers have the distinctive capacity to speed up most cancers analysis in a approach that nobody else can. Collectively, Depend Me In and CancerLinQ will proceed to advance our collective mission to show our well being care system right into a studying system, by letting sufferers with most cancers anyplace share their data with researchers all over the place—in order that data about each affected person’s expertise can profit each different affected person.”
CancerLinQ, one of many largest and most-diverse real-world-oncology databases, contains de-identified information from greater than 2 million sufferers with most cancers from all 50 states. The CancerLinQ community contains over 100 most cancers facilities and neighborhood oncology practices.
Since 2015, greater than 10,000 sufferers with most cancers have joined Depend Me In and shared their distinctive medical data and historical past. Anybody with a historical past of most cancers, dwelling in the US or Canada is eligible to enroll in Depend Me In.
This news release was printed by ASCO on April 5, 2022.