New insights into views of older adults and caregivers on healthcare navigation, resolution making

As a part of an initiative funded by The John A. Hartford Basis, FAIR Well being performed a nationwide examine comprising two surveys geared towards older sufferers (adults 65 and older) and household caregivers/care companions. The surveys revealed vital insights into the wants of older adults and their caregivers/care companions regarding healthcare navigation and resolution making. The survey findings have been printed in FAIR Well being’s new white paper, Healthcare Navigation and Determination Making: Views of Adults Aged 65 and Older and Household Caregivers.

Key survey findings

FAIR Well being performed two separate surveys: one with older adults aged 65 and older and one with household caregivers/care companions aged 18 and older. The surveys, performed in collaboration with ENGINE Insights, have been fielded in November 2021 and reached 1,005 older sufferers and 507 caregivers/care companions. Every survey requested respondents in regards to the significance of healthcare prices to resolution making, attitudes towards shared resolution making, obstacles to knowledgeable resolution making and healthcare navigation, and navigation of the healthcare system and desires for sources and instruments. Evaluation of the outcomes revealed the next:

  • One in 4 older adults (aged 65 and older) by no means know the prices of healthcare companies earlier than getting a invoice. Though 32 % of older adults reported that they “generally” know the prices of healthcare companies earlier than receiving their invoice, 25 % of older adults reported that they “by no means” know prices of healthcare companies earlier than receiving their payments, whereas 21 % reported that figuring out their healthcare prices upfront relied on whether or not the care was given by healthcare suppliers of their well being plan networks or these not of their well being plan’s community.
  • A major proportion of older adults take into account healthcare prices to be an necessary issue when making healthcare selections; greater than a 3rd have problem getting such value data. Thirty-seven % of older adults felt that healthcare prices are an “necessary” issue when making healthcare selections, whereas 22 % felt that it was the “most necessary” issue when making healthcare selections. Sixteen % of older adults reported that healthcare prices have been “a thought” when making a healthcare resolution, whereas 24 % reported that they don’t take into consideration out-of-pocket value when making a healthcare resolution. Nonetheless, 35 % reported that they discovered getting details about their healthcare prices to be “considerably laborious” or “very laborious.”
  • Whereas a major proportion of household caregivers/care companions take into account prices to be an necessary think about making selections in regards to the particular person for whom they supply care (their care receiver), most don’t focus on prices with healthcare suppliers. Sixty-four % of caregiver respondents felt that healthcare prices ought to be “necessary” (34 %) or “most necessary” (30 %) to their care receivers’ healthcare suppliers and/or groups. Twenty-four % of caregiver respondents reported that they didn’t need the healthcare supplier to consider out-of-pocket prices in selections about their care receiver’s care. Nonetheless, solely 42 % reported that they mentioned these prices with their care receivers’ healthcare suppliers and/or groups. Among the many subset of caregiver respondents who reported that they don’t focus on prices with their care receivers’ healthcare suppliers and/or groups, 64 % wouldn’t like to interact in such discussions.
  • Regardless of a robust curiosity in having shared decision-making discussions, just below a 3rd of older sufferers would not have such conversations with their healthcare suppliers and/or healthcare groups. Forty-five % of older adults are “” or “very ” in having shared decision-making discussions with their healthcare suppliers and/or healthcare groups. Furthermore, 41 % reported that they “at all times” or “usually” participate in such discussions with healthcare suppliers. Nonetheless, 29 % reported that they’ve “by no means” engaged in shared resolution making with their healthcare suppliers.
  • Amongst older adults, encountering difficulties in acquiring value data could also be an impediment to accessing wanted healthcare. In response to the query, “How simple is it to get details and see what your healthcare prices might be?,” 35 % of respondents mentioned that it was “considerably laborious” or “very laborious” to take action. Of this group, 27 % reported that this problem obtained in the way in which of their means to entry wanted care and 21 % reported that it discouraged them.
  • Over one in 4 (26 %) older adults reported pushing aside or skipping wanted healthcare attributable to value. Older adults with decrease family incomes have been extra more likely to report forgoing wanted care in contrast with older adults with larger family incomes. Thirty-two % of older adults with family incomes beneath $50,000 reported that they skipped getting wanted healthcare attributable to healthcare prices. This in contrast with 19 % of older adults with family incomes between $50,000 and $100,000 and 16 % of these with family incomes above $100,000.
  • Household caregivers/care companions have a major want and urge for food for healthcare data, sources and instruments that assist them make higher selections about their care receiver’s care. When requested in regards to the sorts of data, sources and instruments that may assist them make higher selections about their care receivers’ care, most caregivers/care companions chosen details about offering higher care for his or her care receivers (42 %) and prices of care (40 %), adopted by scientific data (35 %), instructional coaching to assist care companions steer via the healthcare system (33 %), details about totally different fashions of care that may coordinate totally different companies (31 %) and instruments that define totally different care selections with prices (30 %). Most caregivers/care companions would like to entry such data, sources and instruments by way of a web site (63 %) or an app on a cell gadget, like a telephone or pill (45 %), with the chance to print paper copies from a web site (39 %).

In 2021, The John A. Hartford Basis awarded FAIR Well being funding for “A Nationwide Initiative to Advance Value Data in Shared Determination Making for Critical Well being Situations.” The 18-month initiative will increase FAIR Well being’s present shared decision-making instruments, that are at present targeted on palliative care eventualities, via the creation of 4 new resolution aids associated to the care of older adults. The choice aids will mix scientific and value data targeted on therapy choices for early-stage breast most cancers, fast-growing prostate most cancers, spinal stenosis and hip osteoarthritis. As a part of the planning grant, later this 12 months, FAIR Well being will even launch new “whole therapy value” eventualities highlighting the vary of prices related to three situations significantly related to an older inhabitants: Alzheimer’s illness/dementia, coronary heart failure and main despair. These instruments might be accompanied by instructional supplies and sources that help each older adults and household caregivers in navigating the healthcare system.

FAIR Well being President Robin Gelburd mentioned: “FAIR Well being’s surveys have confirmed the significance of offering goal, unbiased healthcare value data and engagement instruments to shoppers. The surveys’ findings underscore the necessity and urge for food for shared decision-making instruments and sources that may assist older adults and their caregivers/care companions make knowledgeable healthcare selections, navigate the complexities of the healthcare system and enhance their medical health insurance literacy.”

The John A. Hartford Basis Vice President of Program Rani E. Snyder mentioned: “We applaud FAIR Well being’s work to handle the obstacles that have an effect on healthcare resolution making for older adults and their household caregivers. Findings from FAIR Well being’s report present that lack of awareness about prices can result in obstacles in accessing wanted care. Older adults and household caregivers want healthcare engagement instruments that incorporate dependable value data.”

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